The Manderscheid Family
After a devastating loss at 12 weeks with our first baby in 2006, we were cautiously excited to find out we were pregnant for the second time in June 2007. We were hopeful to have an uneventful pregnancy, but at 12 weeks we started having complications again. Doctors did an ultrasound and were surprised to discover that there was possibly an amniotic band on our baby, potentially restricting blood flow and development. When a follow-up scan at our 20 week appointment also showed a possible amniotic band, we were referred to the University of Iowa Hospitals and Clinics. Their assessment at that time was that there was not a band, and that things looked great and healthy. We were relieved and could not wait to meet our baby in January.
On December 4th, at 33 weeks gestation, I was experiencing lot of contractions and discomfort. It was quickly determined that I was in active labor and, while doctors and nurses tried many different medications to stop or slow things down, it became evident that our baby was coming 7 weeks too soon. They were able to administer one dose of steroids to help develop the baby’s lungs. On December 5th, 2007 our daughter, Cameron, was born, weighing just 4 pounds, 7 ounces, and she was quickly whisked off to the NICU.
Doctors quickly informed us that they had found an amniotic band on Cameron’s arm, and within 2.5 hours of delivery, she was airlifted to Iowa City. Upon her arrival they decided that she needed some time to stabilize before her surgery. Thankfully, that was the right call, as during that night she had a lung pneumothorax, and ended up needing two chest tubes. While she had finally stabilized a week later, they found a dimple on her upper spine– meaning that there was some kind of mass blocking her spine from closing. She still needed to get bigger and stronger before either of her surgeries, and on January 1st, after 27 nights in the NICU, we were discharged home. January 29, 2008 she had her first surgery to release the band on her upper left arm, and it was a success. Less than a month later she had spinal surgery to remove her benign tumor.
Cami has had countless hours of therapy, and even 2 follow-up surgeries to try to maximize the use of her wrist, hand, and fingers. Her spinal surgery even caused a few complications with her spinal cord as she has grown, and she had an additional surgery in August of 2015. Throughout all of these setbacks, Cameron has shown us what is important in life, and she amazes us every single day. She has beat anything that has been thrown at her over and over again.
We got involved with the March of Dimes in 2009 because the research that they do has helped to save Cami’s life. We are excited to be serving as the 2018 Dubuque March for Babies Ambassador Family, and to be giving back to a foundation that has given us so much. Sharing our story will help bring awareness to the importance of the March of Dimes and their mission, while also raising essential funds to support their life-saving research.
Tricia, Jamie, Cameron & Jaxon Manderscheid