Meet the Knorr Family
My husband Matt and I had been trying to have a baby for over a year. In May of 2018, my husband rushed me to the emergency room because I was in severe pain from the 3 large fibroid tumors that were found a few weeks earlier, which then quickly led to the discovery that we were pregnant. We cried tears of joy because we had waited for this moment for so long. Doctors told us that because of the complications I was already experiencing, the chances of having a healthy and full-term pregnancy were nearly impossible, and they were concerned with both my own health and the health of our baby.
A month later, I developed DVT blood blots and had to be put on blood thinners for the remainder of the pregnancy and was closely monitored by both my OB and the High Risk OB with biweekly appointments. That October, at just 23 weeks, 2 days pregnant, I was bleeding so badly that we rushed to the hospital. Two days later, Maddison Claire was born weighing only 1 pound, 7 ounces. I felt almost euphoric. For the first time in almost six months, I was completely pain free. I couldn’t see Maddison, but I could hear the doctors and nurses tending to her. I finally got a quick glance at her from a distance before they wheeled us both out. A few hours later, we were finally able to visit our baby girl in the NICU, it was the scariest moment of our lives. NICU staff still surrounded her. She was covered in bruises because of her traumatic delivery, and she had cords everywhere, monitoring everything. While we couldn’t yet hold her, we were able to lightly touch her hand.
Time seemed to stand still the over the next several days. I was discharged, but I decided to stay at the hospital hotel so that I could be near her. I will never forget the first time I held Maddison. I carefully lifted her to my chest and felt her tiny warm body on mine. It was quite the production to move her, and the nurses cautiously lifted her cords and tubing and taped them to me. I sat there motionless cradling my precious, fragile daughter.
Maddison finally hit 2 lbs. on November 9th. We spent our first Thanksgiving snuggling in the NICU, and later that month, she was transitioned to an actual three-hour feeding schedule and gained another pound. Just as things were looking up, Maddison contracted a terrible infection and was quickly transferred to Children’s Hospital of Wisconsin in Milwaukee. My heart dropped. All we could do was watch from a distance, listening to her cry. It was loneliest and most exhausting time in my life. That’s when I first met Angie, NICU Family Support Specialist with March of Dimes. She invited me to group support meetings and introduced me to the My NICU Baby app to learn more about what we were going through. At one of the meetings, we made a string of beads that showed Maddison’s NICU milestones. By this time, we had been in the NICU for 62 days and experienced a lot of Micro Preemie Milestones. Angie explained what every bead meant and how important they were in Maddison’s NICU journey.
We spent the holidays in the NICU, and in January, Maddison turned three months old and reached 100 days in the NICU. Sadly, when her original due date of January 27th came around, she was not strong enough to come home yet.
Meanwhile, I couldn’t put off the surgery any longer because it was causing moderate to severe kidney damage, so I underwent a hysterectomy to remove the fibroid tumors. Being so nervous the morning of my surgery, I couldn’t help but cry with every thought of Maddison, not being able to see or visit her was heartbreaking. My Doctor explained that the surgery was successful but had been more complicated as one of the fibroid tumors had become necrotic and created a fistula attaching itself to my small bowel. She explained that if it had perforated it, I could have gone into sepsis and died. A Vascular Surgeon was called in to do a small resection of my small intestine, which meant my original two night stay was going to become longer. Two days after surgery, still in my hospital bed, I was wheeled up to visit Maddie. It was the best reunion! It was a short visit, but it lifted my spirits. Unfortunately, the next day I came down with a serious gastrointestinal infection, and I was not allowed back into the NICU for 48 hours.
When we finally brought Maddison home after 144 days in the NICU, she weighed 9 lbs., 2 oz. Since her discharge, Maddison and our family have had to overcome several obstacles, but we are taking them one day at time. While her Micro-Prematurity will never be lost on us, it is something she may struggle with for the rest of her life. To this day, I cannot imagine the thought of having lost her, or if something would have happened to me and she’d have to grow up without a mother. We are forever grateful to all those who supported us throughout this difficult journey, and we are honored to be the Ambassador Family for this year’s March for Babies.