Our team is part of the movement to create positive change for moms, babies and families everywhere. This past year, we became members of the board for March of Dimes in order to raise awareness and to honor our late son, Trey Chai Levy (4/1/2023-4/5/2023).
Our Story:
On April 1st, 2023, I was 33 weeks pregnant. I was experiencing an uneventful, completely normal pregnancy and even had a perfect routine ultrasound just days before. However, that day, I noticed the baby seemed to not be moving. I underwent an emergency c-section, giving birth to our son, Trey Chai Levy. Trey immediately required high level medical care, sending him urgently to the NICU. It was found on Trey's EEG that he had minimal brain function. After several other tests and every medical measure possible, Trey passed away in the NICU just 4 days later on April 5th. We were left shocked, heartbroken and longing for answers. Several nurses and doctors told us they had never seen anything like this in their entire careers. We were told we'd never find out what happened or why.
After several months of ruling things out, we finally received a probable answer. I was diagnosed with a rare autoimmune blood clot disorder called Antiphospholipid Syndrome (APS), which yields terrible outcomes for fetuses during pregnancy. According to some sources, the rate of fetal loss may exceed 90% in untreated patients with APS. This disorder was the likely cause for Trey's death. APS can be a silent killer - it is not tested for during pregnancy, yet there are preventative measures that can be taken if detected early enough or prior to pregnancy.
Family Update: On August 21st, 2024, we welcomed a healthy baby into our family, after a healthy (heavily monitored) pregnancy. Born at 36 weeks, our baby girl, Teddi Rae Levy, is named after her late brother, Trey.
We are raising awareness for a cause that means so much to us to hopefully prevent even just one family from going through something like this.
We are raising awareness to honor AJ and Teddi's brother, Trey. We love him and miss him every day.
(AJ-almost 5 years old, Teddi-almost 2 years old)
We will be walking alongside the Kohn family, in memory of their son, Aaron, who was stillborn in July 2018.
Please consider joining our team to spread awareness and to help support March of Dimes in all the important work they do!
Love,
Leah & Adam Levy
March of Dimes is dedicated to bringing people together to tackle America's maternal and infant health crisis—one person, one community, and one step at a time. More than a series of walks, March for Babies is an annual tradition that supports moms and babies every day, every step of the way.
March for Babies connects friends, families, and coworkers to improve the health of families nationwide. Together with March of Dimes, each step forward brings us closer to a healthy future for all.
Thank you for your support!
