Our story with prematurity is one that most of you know. Our twins, Jack and George, were born at 28 weeks and 6 days after a completely healthy pregnancy with no complications. Their early arrival was both shocking and terrifying, and the next 125 days would change all of our lives forever. Jack’s survival was nothing short of a miracle. He came home from the NICU without supplemental oxygen and started his life with us as a healthy little boy with a big story to tell one day.
Sadly, his battle with prematurity did not end when we left the NICU. He was diagnosed with pneumococcal meningitis in January of 2019, and it has impacted his and our lives in ways we never imagined. He is battling a severely complex case of hydrocephalus and has had 19 brain surgeries in his young life. Our lives are all now devoted to therapy appointments and doctor's visits, and doing everything we can to navigate the enormous challenge of having a toddler with a brain injury while pushing forward to give him the most independent and happy life possible. We are leaving on April 22 to spend a month in intensive rehabilitation at the Shirley Ryan Ability Lab in Chicago and are hopeful the visit will bring positive steps forward. We will be there, hard at work, on the date of the virtual March for Babies this year, and hope that you will join us in spirit as we walk that day to remember all that we have overcome so far and hope for a brighter future ahead.
There are so many organizations that have touched Jack's life, but none quite like the March of Dimes. I am reminded every year during March for Babies season how grateful we are for all of the medical advances funded by the March of Dimes that saved Jack's life and all that the organization is doing to help children like him thrive. Premature birth and its complications remain the #1 cause of death of children under 5 in the United States. Babies who survive premature birth often have developmental challenges and long-term health problems, including cerebral palsy, intellectual disabilities, chronic lung disease, blindness, and hearing loss. The March of Dimes is working tirelessly to fund research and fuel efforts to reduce premature birth and protect mothers to give every mom and baby a fighting chance. I hope you will join us in supporting thier efforts.
Amy, Michael, Teddy, Jack, & Georgie
With preterm birth rates continuing to rise, the U.S. remains among the most dangerous developed nations for childbirth, especially for women and babies of color.
At March for Babies: A Mother of a Movement™ you're lifting up communities, creating connections and taking action to make America a more equitable place and ensure that every mom and baby is healthy.
Together, we’re marching to raise funds and awareness to transform the health of all families!
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